Membership

INDIVIDUAL SNaNe MEMBERSHIP

The Swiss Narcolepsy Network (SNaNe) is a professional organisation for medical, scientific and healthcare workers dealing with sleeping disorders. We are a registered Swiss on-profit entity and our ultimate aim is to foster cooperation in Switzerland among health professionals, scientists, patient’s organizations and general public to promote the diagnosis, treatment, psychosocial support, research and awareness of narcolepsy and central disorders of hypersomnolence (CNS-H) and to improve public health by promoting education and research into sleep and its disorders.

Becoming a member of the SNaNe opens the door to a passionate and committed group of health professionals who understand that quality sleep is one of the three key aspects of good health.

SNaNe members are committed to ongoing learning and professional development, and frequently learn from one another across disciplinary boundaries. As a member you receive frequent sleep-related news updates, and the opportunity of joining the Assembly of Members.

Check out your membership rights!

INSTITUTIONAL SNaNe MEMBERSHIP

The Swiss Narcolepsy Network (SNaNe) plans to launch a national Swiss database on narcolepsy. The basic idea is run a scientific database and prospectively collect data on narcolepsy and related disorders of hypersomnolences. The SNaNe database is designed as a long-term project to integrate clinical and preclinical data, including sleep studies and biosamples (blood and cerebrospinal fluid) at inclusion and at regular follow-up visits. The SNaNe database is implemented as a web-application using the Redcap data platform. The SNaNe invites Swiss sleep centers who are experienced with clinical care of narcolepsy and other patients with hypersomnolences to join the database as institutional member. The institutional members must follow Good Clinical Practice “GCP-guidelines”. Only SNaNe institutional members will have access to data of their own study site.

For any further information on the Institutional Membership and Swiss Narcolepsy Database please contact ramin.khatami@barmelweid.ch